In May, I was diagnosed with chronic mono due to a high Epstein-Barr virus count and constant complaints of feeling tired. (According to my doctor, there are many doctors who don’t believe that chronic mono exists.) Chronic mono is a gateway illness that can lead to chronic fatigue syndrome (CFS). (Although CFS can have other triggers unrelated to EBV.) There’s not much information about chronic mono, but here’s what I’ve found:
According to Livestrong.com, mononucleosis is caused by exposure to the Epstein-Barr Virus, or EBV. Apparently, close to 95 percent of adults between ages 35 and 40 carry an inactive form of this virus. While many people may never experience symptoms, those who do experience symptoms may see a resolution within 2 months. Those who experience symptoms for 6 months or more are likely to have chronic mono.
What are the symptoms of mono?
- Swollen lymph nodes
- Fever
- Sore throat
- Fatigue
- Liver and/or spleen enlargement
While I haven’t had swollen lymph nodes or fever, I have had recurring sore throats (not lately since I’ve been on a supplement) and severe fatigue. As far as I know, I don’t have an enlarged liver or spleen.
There’s not much reliable information on the Internet about chronic mono so please feel free to chime in if you know anything about the illness or virus.
Monica said,
October 22, 2012 at 8:03 pm
people with these sorts of chronic illnesses can be diagnosed with a dozen different things if they go to a dozen different doctors…or they might just be told it’s all in their head too…
chronic illness is rampant these days…if you want to check in with me I’ll share what I’ve learned…I’ve spent a lot more time in chronic illness communities in the last two years than in the psych drug worlds…I’ve needed to in order to learn how to get out of it myself…people with trauma histories and those who have been on psych drugs both are at higher risk for many reasons. Coming off and on psych drugs also jack up the risk.
it’s very complex and as you might imagine it’s different for everyone.